Thalassaemia in Bangladesh: Prevention strategy
As treatment is expensive and lifelong, most patients cannot afford it and develop complications and die young. Depending on age, frequency of transfusions, and dosage, it costs Tk 5,000 to 10,000 per month. Our country has 140,000 thalassemia patients. No patient registry exists. These patients need expensive treatment. Every year, many thalassemic are born. Preventing thalassemia births is best.
BSMMU launches country’s first genetic abnormality test of foetus
Any woman who is 11 to 14 weeks pregnant will be able to take a risk assessment test of the foetus at a cost of Tk4,500
New genetic disease that delays children’s brain development discovered by scientists
During a recent study, scientists identified a new genetic disease, which causes some children’s brains to develop abnormally, resulting in delayed intellectual development.
Bangladeshi toddler gets gene therapy worth 22C at no cost
Raihan, almost two years of age, suffers from spinal muscular atrophy – a rare and complex congenital disorder of the nervous system
SMA disease: Parents only wait to lose their loved ones
According to the statistics, one in every 6,000 to 10,000 babies worldwide is born with SMA. So, it can be estimated huge number of babies are born with SMA in Bangladesh and ultimately they die, putting their parents and relatives into unmeasurable loss and pains.
A month after gene therapy, Raihan can now move, sit up and talk
Raihan received the gene therapy medicine for his neurodegenerative disease free of cost under a global project on 24 Oct